THE “HELL” THAT MEDICINE CAN BE

BOSTON CHILDREN’S HOSPITAL – REDUX

Now that Alaska has its own scandalous medical situation, I wonder how many other states and hospitals are as sleazy as Boston Children’s Hospital. When the word finally got out that the “doctor” who diagnosed Justina Pelletier with Somatoform Disorder was in the United States to complete his medical training and had been at the hospital for only seven months, all kinds of red flags got raised for me.

First of all, this guy would probably be only a resident. That means he is not even yet a full-fledged doctor of anything. My experience with residents has been less than wonderful at times.

When our daughter was at Boston Children’s she had a resident come in and tell her that they would not give her her thyroid medication because her blood tests indicated she was fine and didn’t have any thyroid problems at all. She told him she had been taking the medication for two years and that was why her levels were normal, so if they took her off she would no longer be “fine.” He continued to argue but finally conceded the point and gave her the medicine. Why should she have had to defend herself? If the guy had any brains at all the situation should have been obvious.

One of the worst problems with residents is they tend to think they know it all and many of them stay that close minded in spite of what happens around them.

For the life of me I cannot understand how this “doctor” at Boston’s has been given leeway to do what he has done. And where has his supervising physician been in this mess?

The DFS in Massachusetts has been less than stellar in their handling of Justina’s case. For them now to say their goal has “always” been to do what’s best for Justina and reunite her with her family as soon as possible is a complete joke. Who does anyone believe anymore? Any patient, or their guardian, at any time has the right to request a second, third, or fourth opinion, and they also have the right to leave a hospital when their needs are not met.

And Judge Johnston needs to be thoroughly investigated. Who does he think he is and what conceivable right does he have to issue a “gag order” in such a matter?

This whole case is such a travesty, both medically and legally. Whatever can be done to restore trust in a hospital with such policies? I sincerely hope Justina’s family sues the hospital, the doctors and the state of Massachusetts, and that they sign no non-disclosure agreements.

In the Alaska case, I know that if our Governor does not at least speak out soon, I will work tirelessly against his reelection, and when the judge comes before voters for retention I will work just as tirelessly against him. When the names of the doctors are known I think they should be sued, individually and as a group. I will never again set a foot in any Providence medical facility if I can possibly help it.

What are the laws in your state governing what the medical profession can do to you? You might check out your state’s Youth and Family Services while you’re at it.

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