Monthly Archives: April 2014

PARKINSON’S DISEASE

Dyskinesia, Homespun philosophy, Medicine, Parkinson's,
    . . . in sickness as in health . . .

    I had thought to be first to leave since you were
    . the one called upon to do the caring, and you soon did
    . as you stood always by me.
    Now I’m not so sure as you descend into your
    . own private hell of illness, PD –
    . Parkinson’s Disease.
    I dreamed last night of a time when you ran up the ladder
    . while carrying two bundles of shingles on your shoulder
    . something you can no longer do.
    I wasn’t worried then but I do worry now –
    . all the “I” sounds above are not about “me”, but about what
    . “we” are – in this together.
    Yesterday we met with Parkinson’s friends to share
    . news and humor (always mixed with pain) –
    . the only place where PD can be funny.
    Sallie wants her PD to “just go away” but says so
    . with laughter and everyone laughs, too,
    . because they know PD doesn’t “go away.”
    We laugh with Peter, who, like many others “freezes”
    . while walking forward. He can only move then
    . by walking backward.
    Once at the airport he “froze” after clearing TSA, then
    . had to walk backwards all the way to his gate and
    . onto the plane – no one even questioned him.
    Some PD people “freeze” but can be “unfrozen”- or
    . is it “thawed”? – by only a touch. Others must be led from
    . the front or pushed from behind.
    Some “freeze” if they try to step on a stool, or step on a line
    . or crack, or maybe the opposite is true, they can only
    . walk if ON a line or crack. Crazy.
    We discussed ways of coping with loss of balance, constant pain,
    . garbled speech, which medicines cause trouble for some
    . but not others, and the things doctors don’t know.
    Susan is newly diagnosed and wants to know if anyone
    . else has trouble with speaking, drooling, falling
    . sleeping, vivid nightmares, leg cramps –
    The three Dans, Deanna, Peter, Sallie and Bob answer as best they can –
    . Susan asks quietly, “Has anyone lost their sense of smell?” All
    . hands go up. She looks relieved.
    After all this is only a “movement disorder” that
    . makes your arms “shake a little bit.” I once heard a
    . doctor on the radio say so.
    He evidently has not seen anyone in the throes
    . Of dyskinesia, or shaking from head to foot, or walking
    . by running rapidly on their toes and moving mere inches at a time.
    Nor has he seen anyone who has not
    . slept more than minutes for what seems like months – as
    . they cry out for nonexistent help.
    Just before leaving I briefly touch again on a matter that intrigues
    me, one that PD people do not often discuss, even
    amongst themselves, and certainly not with doctors –
    “How many of you believe you were born with PD?” Eyes always
    drop as almost all hands reluctantly raise. No one, and I do
    mean NO ONE, will tell their doctor this.
    If a patient did, would it matter to the doc? Or would he think the person
    is assigning too much importance to tracing the cause of
    his illness, or maybe think he’s just crazy?
    You see, no one knows what causes PD. There have been no real
    advances in meds or treatment for nearly twenty years. Big things
    are always just around the corner.
    Until the Big Things happen, we live with what is. I hope you
    know how much of this I share with you as I clasp your trembling
    body in the night.

INVASION AT FORTY-MILE

BLM, Corruption, EPA, swat teams, ,

WHICH CAME FIRST, CHICKEN OR THE FEDS?

A few years ago my youngest daughter and I decided to drive the Top of the World Highway, which runs from the Alaska Highway near Tok in Alaska to Dawson City in the Yukon Territory. The border crossing is at a tiny town named Chicken, population about 17, depending on the time of year. The road splits at Chicken and the Taylor Highway goes north about 32 miles following the Forty Mile River to Eagle, a small town on the Yukon River. The drive to Dawson City is beautiful and we had a great time, but we had to stop for awhile in Chicken when my daughter’s chronic illness caused her some problems. We were in Chicken long enough to know there is nothing but wilderness anywhere in the whole Forty Mile area. It is impossible for the inhabitants to have any secrets.

There are miners who hold placer mining claims along the Forty Mile. They sluice for gold only in the summer months and most of them bring their wives and children to help with the work. There are clean water regulations that the miners must follow so they don’t pollute the river and the State usually has agents out checking the mining sites and settling ponds once or twice a summer, just to make sure only clean water is released back into the river. The agents travel alone and carry arms for safety against bears and other critters. Once in awhile a miner might be cited for a minor infraction, but it’s no big deal, and the miners and agents have traditionally had a good relationship.

At the end of August, 2013 miners and their families were startled when at least 6 or 7 heavily armed Federal agents dressed in combat gear, including body armor, driving military vehicles and wearing large police signs began showing up at their mining sites, looking and acting as though they were ready for battle. Over several days they searched around cabins and outbuildings, threatening and trying to intimidate the miners and their families, who were totally mystified by the visits. The miners called Alaska State Troopers and the Governor’s office demanding to know what was going on. The Governor called the EPA and was told that the State Troopers had asked for help from something called the Alaska Environmental Crimes Task Force because of “rampant drug and human trafficking going on in the area.” The Troopers said they knew absolutely nothing about such a request, nor had they ever heard about such charges. The Troopers denied they were involved in the raids at all and said the harassing agents from the Alaska Environmental Crimes Task Force came from several different federal agencies, including the EPA.

The Alaska Dispatch reports that Alaska’s lone US Representative, the Senators and the Governor have looked further into the matter and demanded an explanation from the EPA, but to date no response has been given.

Alaskan’s are angry over this matter, and anyone who has ever been to Chicken and Eagle can only wonder how “rampant drug and human trafficking going on in the area,” could possibly be a reality. Where would the trafficking come from and where would it go? I mean, attempt to haul anything through or hide it in the Forty Mile? Get real.

The Cliven Bundy matter in Nevada is another ratcheting up of domestic militancy by the EPA, the BLM and other federal agencies. All done with blessings from the top of this ruinous regime.

Chicken came before the Feds, but they just want it gone.

THE CARE AND FEEDING OF GENIUS

Education, intelligence, Truth, Uncategorized, , , ,

CAN WE REALLY KNOW WHAT GENIUS IS?

In the late 1970’s Popular Science ran an article about The Next Decades Up- and-Coming Young Scientists, or something of that nature. At the time I was busily engaged in the trenches rearing three small children. Our eldest son had scored very high on an IQ test (I almost want to say here that he was “diagnosed” with a high IQ), which was no surprise, but it did increase our insecurities about how best to meet his needs.

The author of the article in question interviewed several of the men and women scientists who had been recommended for the magazine’s honor. Some of the questions asked and the answers were very illuminating.

When asked when they knew they were “smart”, over half said they had no idea until they took the SAT and/or entered college. They thought of themselves as “just one of the guys” until they went away from home. There were very few who said their parents told them or any of their siblings they were smart or praised them for it. Some of the respondents still sounded shocked that they were considered smarter than average.

When asked what they considered their biggest advantages in growing up,  the answers were almost all along the lines of:

My parents made me do my homework, and they checked it.

I had responsibilities at home, but learning was a priority.

My mother took me to the library at least once a week to get as many new books as I was allowed to borrow, and made certain I both read the books and took care of them. My parents questioned me about them.

Both of my parents were interested in what I was doing and what I thought. We ate dinner together and discussed everything under the sun.

All of the respondents said their strengths started with their parents and being taught to work.

The article also quoted one top scientist as saying, “You can learn anything in the world if you have an IQ of 120, anything above that number is just so much gravy.”

I’m still not convinced that we know enough about intelligence to “test” for it. What is considered intelligence in one culture may be totally irrelevant in another. Is a Polynesian explorer steering his canoe by his knowledge of the ocean and heavens any less intelligent than a book taught scholar at Cambridge? Would some of our present day educators have enough knowledge to survive if dropped into a wilderness? What kind of IQ would survival take?

So, does IQ matter? I read once that after Richard Feynman won the Nobel Prize in Physics, he and his wife visited his old high school where he asked to see his school records. Upon leaving he turned to his wife and said, “Winning the Nobel Prize didn’t seem like such a big deal, but now that I know my IQ it seems huge.”

I have watched the trap that parents of “smart” kids can fall into when they think that their child “has no peers”, as I heard one woman say. It’s an easy trap to be caught in. When our son skipped sixth grade and began Middle School he left his friends behind and felt lost without them. He came home one day and happily told me he had made a friend. Without thinking, I asked, “Is he smart?” My son, wiser than I, answered, “I don’t know, but he sure is nice.” I mended my ways.

Remember, we should be engaged in the business of rearing good people first, geniuses if we have to. Now that I have watched my children become adults and begin families of their own, I have learned a few lessons that, in the real world, seem important to me in growing those good people:

All children should be taught to work at a young age. They should also be given some moral and/or religious instruction.

All of your children, whether genius or not, will have different strengths and weaknesses. Other children are their peers.

All children will fail, and need to be told they failed. Their feelings will recover and their self respect will be strengthened when they master what they failed at.

Never be afraid to tell your children “NO”, and mean it.

Unless they are infants or ill, never clean up after your children. They need to clean up their own messes and mistakes.

All children should learn a skill or trade, but not all should go to college.

Your child may be a “late bloomer”, cut him or her some slack.

All children, no matter how “smart”, will have troubles and heartache. It’s called the human condition.

At some point, earlier than you might think, you lose the right to be your child’s boss. They’re on their own.

As long as your children know how to work and love God and learning, chances are, no matter what they do, they’ll be fine.

One more thing. If I were doing things all over again today, I would home school in a heart beat.

SABBATH PRAYER

Biblical Wisdom, Musings, , ,

AFTER THIS MANNER THEREFORE PRAY YE . . . Matthew 6:9 KJV

My friendly advisor in Judaic thought tells me that in some sects of Judaism the practitioners are told not to engage in intercessory prayers on the sabbath, although they may ask for blessings on the sick. The theory here is that God established the first sabbath based on His own need for rest following creation, and that He still has need for rest from the pleas of His children. As my friend says, “I’m sure He doesn’t like to hear our whining all the time.”

This is a new way of looking at prayer for me. I have heard sermons given  where we are told to pray once in awhile and ASK FOR NOTHING, but GIVE ONLY THANKS to God for His blessings, and that such a prayer should make us more grateful and aware of all God does for us. Making it a regular sabbath day matter had not occurred to me.

In what manner ought we to pray? Even the Disciples asked, ” . . . Lord, teach us to pray . . .” (Luke 11:1) KJV. Dietrich Bonhoeffer recommended the Psalms as a teaching tool for prayer based on a sermon given by Martin Luther. Bonhoeffer said that every person seeking God in prayer should take the time to study all of the Psalms at least once each year.

Jesus did give the true pattern of prayer in answer to the request of His disciples. Although it is translated a little differently in the Gospels of Luke and Matthew, the essence is the same, and it is beautiful in its profound simplicity. It is known as THE LORD’S PRAYER as given in Luke. Let’s break it down to see if we can truly consider the meanings:

Our Father which art in heaven, Hallowed be thy name.
We pray to the Father of us all, who dwells in Heaven, and give reverence to His name to show our love and awe for Him.

Thy kingdom come. Thy will be done, as in heaven, so in earth.
We need to be reminded that it is His kingdom we seek. In order for that kingdom to come, we seek to follow His will here on earth and to pray to understand it. This reminds us to always consider our doings carefully and not rely on our own limited understanding.

Give us this day our daily bread.
Such a simple thing, our daily bread. We don’t ask for great riches or glory here, merely the “bread” that sustains us. Beyond that we also need to remember that Christ is “the Bread of Life.”

And forgive us our sins; for we also forgive every one that is indebted to us.
The reminder that in order to be forgiven by God, we, too, must forgive all men. We need so much help in forgiveness and we need to ask God to help us in that grueling task. Notice here that Luke says we are to forgive “indebtedness”, a term which covers all sorts of payments we think are due us, maybe even the value of a tooth for a tooth, or for emotional or monetary harm. We need to learn to forgive, but we can still ask for justice to prevail.

And lead us not into temptation; But deliver us from evil.
Does God “lead” us into temptation? Does He always “deliver” us from evil? These are hard questions. Is this another statement of how the world really is? Can we be led easily into temptation, or from time to time, through no fault of our own, find ourselves in a place where we must be “delivered from evil?” Perhaps we need to think of this as a responsibility we each have, to pray for the strength to resist temptation and, if at all possible, the strength to flee if we are placed in a dangerous or evil situation.

Luke 11: 2-4. KJV
. . . For thine is the kingdom, and the power, and the glory, for ever. Matthew 6:13: This ending is left off in Luke’s account. But we must remember it and always keep in mind that the kingdom belongs to our Father, whose kingdom, and power, and glory we seek.

Amen. This is our seal of acceptance for what we have prayed.

The Lord does not want “vain repetition”, but rather thoughtful prayers – from the heart. Jesus said that God our Father knows what we need before we ask, but we still need to talk to Him about those needs. That is good six days a week, but perhaps we should approach our sabbath day prayers a little differently. Give our Father a rest and let the thanksgiving really count on that day.

REVISITING THE FOURTH COMMANDMENT

Biblical Wisdom, Education, Truth, , ,

WHY THE SABBATH AND FREEDOM INTERTWINE

In previous postings about the Sabbath Day observance required by the Fourth Commandment I had raised the question of why God would make this a matter of freedom for Israel, and I felt I needed to consider what keeping the sabbath holy might do to make us as individuals and as a nation worthy of that freedom.

As I posted before, there are three things God required of Israel in regards to the sabbath day. They are: (1) To keep the sabbath day holy; (2) for you and your family to do no work, nor are you to require anyone else, including strangers and slaves, or even animals, to do any work on the sabbath day; and (3) to remember that the Israelites had themselves been slaves and that God had made them free.

I did not understand the relationship between the sabbath and freedom, and yet The Lord told Jeremiah that if the Kingdom of Judah would again keep the sabbath holy Jerusalem would remain free and stand forever. Last week I caught a small glimpse of the link between sabbath worship and freedom and why our nation is losing liberty.

When people turn away from God and no longer follow His ways, they lose the knowledge that it is He who made man free: that all men are created equal, and endowed by their Creator with certain unalienable rights, that among these are Life, Liberty, and the Pursuit of Happiness. Unalienable, or inalienable, means an inherent, or inborn, right which cannot be taken away, nor should it be relinquished by the possessor. If people forget this meaning it becomes easier for unscrupulous men and women to foster the thinking that it is the Government that GRANTS freedom. One way to understand the nature of freedom is to REMEMBER that we have all been in some form of slavery. We have not all been in physical slavery, but we are all slaves to the lies we believe.

Where do we learn the TRUTH that makes us free if we no longer give time to God and His Word? How do we even know what freedom and liberty are if we have no contact with truth? Keeping the sabbath holy was enjoined on the people of the bible to keep them REMEMBERING God by REMEMBERING that only HE can teach us Truth and guarantee freedom.

Learning about the truth of God and the purpose of our lives requires us to consider HIM in all our doings. The sabbath day requirement to REMEMBER WE WERE SLAVES directs us to the ways of The Lord

He does not want slaves, He wants men who freely turn in love to Him, with broken hearts and contrite spirits. When men humble themselves before God and put Him first they become more able to resist relying on the arm of flesh and to begin acting on God’s Commandments which were given to insure freedom and safety for all. That is the only way to have a civilized society and a nation worth saving.

Is sabbath day worship the most important thing we can do for the freedom of the United States of America? How many of us will it take for God to honor our effort? Are YOU willing to follow this commandment?
I, for one, am convinced that this understanding of the nature of freedom and the sabbath is a small but important step in the right direction.

THE HAREM

Biblical Wisdom, Education, Uncategorized, , , , , ,

Why can’t Tommy come over to play?

When our eldest son had just turned five and his sister was almost four, we moved to a new home in a semi-rural area. There seemed to be no young children in the neighborhood, but right across the street from us lived two brothers of about ten and twelve. They lived in absolutely appalling squalor and had parents who ignored their basic needs. The oldest boy, Tommy, struck up a friendship with our children and played with them in our front yard where we could watch them. In spite of his home circumstances Tommy seemed like a nice boy and one of us was always around so we relaxed thinking all was well.

One day Bear went downstairs and found Tommy had sneaked our daughter into the house and into her bedroom, closed the door and was kissing her and removing her clothes. Bear marched Tommy out the front door and told him to never come to our home nor touch our kids again. Going to his parents would have been absolutely futile, the State Children’s Services already had a bad name, and we were reluctant to start a neighborhood feud. Our daughter and son were told Tommy could not come over anymore, and Bear talked privately to our daughter, asking why she didn’t stop Tommy from what he was doing and cry out for help. “Well,” she said, “you kiss mom all the time so I thought it was OK.” Yikes! Bear let her know that what Tommy had done was not OK and told her what she should do if the circumstances ever arose again.

A couple of days went by and our son came and asked why Tommy was not allowed to play anymore. As much as I could I filled him in on what Tommy had done and said we couldn’t trust him now. Our son went off for awhile, then came and asked if Tommy could come over again if he apologized to Bear. I sent him to his dad to find out. Not wanting to discourage good behavior on Tommy’s part, Bear said he would consider it. Our son talked to Tommy and he did come and apologize. Bear thanked him for his apology and told him he would think the matter over, but both he and I had absolutely no intention of letting Tommy be around. We hoped to let the matter drop there.

A few more days passed and our son approached me again. This time he said he had come up with a solution to the problem. He had a really bright idea alright: “Whenever Tommy comes over we’ll just lock Sissy in the closet until he goes home.” The sheer audacity of my son, the male, chauvinist pig in training, was overwhelming to me. What kind of a kid was I rearing here anyway? I kept my cool, stood there for a moment and finally asked if he really thought his sister should be locked up. He sighed and said, “I guess not,” and left.

That evening I told Bear about our son’s “solution.” We both had to laugh at his ingenuity. Then I put my mind to his obvious need for proper training. The next day I looked at our son and realized he was just five years old, barely out of infancy. He had needed friends to play with, and Tommy had filled some of that need. He had no concept of what constituted improper behavior on the part of a much older boy. He was not a beast, he was a lonely little boy who needed to learn more about the problems of the larger world. We began discussing some ideas with our children much earlier than we had thought we needed to, and began doing more as a family to try and find other children for ours to be around.

Later I gave serious consideration to my son’s idea of locking his sister in the closet. I wondered if that same thought hadn’t been a societal and cultural solution to the matter of protecting women in a barbaric society. You know, “The boys are coming from the Mountain Tribe, hide the women.” So the women were placed in protective custody away from the men. Perhaps the women finally rebelled at being stuck off alone in a room away from their accustomed quarters, so the family built a larger secure space for them. A Harem for the women. Then what had started out with good intentions became first a tradition and then a prison as the years passed.

I began to consider many cultural things we in the west find degrading to women, such as veiling and chadors. Perhaps wearing such coverings also started with good intentions. Think about living where sand gets blown about into eyes, noses and mouths. Even the hair gets filthy. Wear at least a head covering or robe that can be quickly pulled over the head and face in a sandstorm and you solve a real problem. As the years pass the wearing of head coverings of different kinds becomes another rigid rule.

What about the women who are forced to walk three steps behind their men? Is it possible that custom also started as a protection for women in nomadic societies? The men walked in front with spears and clubs to protect the important but physically weaker women and children. Soon what started out as a protective measure became a rule and then a law. Women MUST walk three steps behind their masters.

Over time did these and other customs cause men to degrade women in their own minds and consider them as evil chattel? It would be a short step for some men to blame women for their own problems, even if you leave Mother Eve out of the equation. What about our own thinking today when boys and men are treated disrespectfully and their very nature as men is questioned? We drug boys and deny they are different than girls. Do we have customs that serve no good purpose? Probably. And conversely, in our hubris have we destroyed societal norms that were a protection to us all? If you look at the moral squalor around us you’d have to say yes.

I would be remiss if I didn’t tell you more of Tommy. We watched as he and his brother became more and more untamed. The family finally moved some years after the happenings I’ve described. Then one day the news covered a story of two adult men who held a party where teenagers were supplied liberally with drugs and alcohol. Three of those strung out teens stole a car, drove on the wrong side of the highway out of town and hit a State Trooper head on. After the trooper’s death the two adults were charged with Involuntary Manslaughter and Contributing to the Delinquency of Minors. One of those men who held the party was Tommy. I watched his first court appearance on TV. The other man involved in the party was busy laughing, acting tough, and giving the finger to everyone. And Tommy? Well, I have never seen a more broken person than Tommy. His whole skinny little body was quaking, he was crying and groaning as he wrapped his arms protectively around himself, rocking back and forth. He never raised his eyes as the tears ran down his face. He looked as though he had stepped from a torture chamber in Dante’s Third Circle.

As I watched I saw the young him and the things I knew about his life. I felt so guilty and wondered what I might have done to help him. Maybe once in awhile I could have brought him over for cookies and milk at a clean kitchen table and that would have given him hope. Some small sign of caring might have been enough, but in reality I still don’t know what we could or should have done.

The broken man he became haunts me as much as the young boy he was.

WHEN DOES A STUDENT DOCTOR BECOME A LICENSED PHYSICIAN?

Corruption, Medicine, Truth, , , , , , ,

WHERE WAS THE SUPERVISING PHYSICIAN AT BOSTON CHILDREN’S HOSPITAL, AND WHERE ARE THE GOVERNORS OF THE STATES OF MASSACHUSETTS AND CONNECTICUT?

The unseemly horror story of Justina Pelletier taking place in Boston, Massachusetts is so nauseating one wonders at the ability of the physicians involved to live with themselves, to say nothing of the judge and those in Children’s Services.

After reading that the “doctor” who diagnosed Justina with Somatoform Disorder had come from Holland and been a Resident at the hospital for only seven months, I was stunned. It is misleading to treat him as a full-fledged Doctor of Psychology or Psychiatry, and for him to make a diagnoses of Somatoform Disorder, or anything else for that matter, without the direct aid of his Supervising Physician. He had only completed the “Book Learning” portion of his studies (no matter how many “papers” he had authored), and had been accepted at Boston Children’s Hospital as a Resident to train for his medical specialty. Residency requirements depend upon the specialty selected. They vary from three years to become a GP (for instance), or up to seven years for more advanced degrees such as Neurosurgery. THEN the doctor must also complete a Fellowship in his specialty. The Fellowship timing varies from one to three years.

Only after completing all that training may the doctor take the exams for licensing to become a physician all on his own. He would need still more testing and training if he wished to become Board Certified. Thus the doctor in Justina’s case has completed nothing but basic medical school and was performing duties under his Supervising Physician’s license. Who is that person and why did he or she allow this travesty?

Which brings us to the Governors of the States of Massachusetts and Connecticut. Why has Deval Patrick not stepped in to end this matter once and for all? Has it not occurred to him that the anger his Children’s Services are causing by their arrogant and overweening actions is harmful to both him and to his state? Both residents of the state and nonresidents alike are aware of his lack of leadership in this matter. There are those who will no longer visit Massachusetts nor bring their children to its hospitals. All those who have been following Justina’s story and praying for her see what the governor  does, or does not do in this matter and should hold him accountable.

And why isn’t Governor Dannel Malloy of Connecticut demanding the return of a juvenile resident of his State?

There is nothing, absolutely nothing, that can begin to describe the disgust that Boston Children’s Hospital and Judge Johnston deserve.